Grumpy, Tired, & Useless.

So today much like yesterday I feel grumpy, tired and useless. I feel like everything I say and do is wrong. That all I want to do is sleep. When I have lots of time to cook and clean I just don’t feel like I have the get up and go. I don’t like the thought of food, but I’m hungry. So veggies and tomato based sources are all I can stand the thought of eating.

A lovely lady said to me, chemo four was her worst, (not her exact words lol) but it is, and I have 3 more to go ๐Ÿ˜ฉ of tax. I will spell the proper name when I am up for googling that.

I take everything to heart, I want to go and figure out some sort of amazing motivating calling in life but I can’t even be energetic enough to move out of bed. All I want to do is sleep and I know I shouldn’t as it makes me feel worse, and then I don’t sleep at night. And when I do sleep at night I have nightmares. I have dreamt the craziest things and I don’t want to be dreaming them as they all leave me in pain or dead! I’m not even joking, it’s ridiculous! My brain is having a melt down about cancer, life and just dealing with all this. I worry if I eat too much dairy I’m making myself I’ll, if I have a beer or glass of wine I’m going to boost cancer, that if I do anything it will spread, or if it’s gone it will come back, or if it has spread, what tests should the hospital be doing. I go for treatment but no one X-rays me, or tests me what if I am all clear, what if I am not. What if, what if, what if…. Seriously I am driving my self insane. I shouldn’t be thinking these things, but it is all consuming!

I’m narky, I’m irritable, I’m upset and crying most days and I have no way to rationalise this whole stupid situation. I want to be at work, doing what I do, I want to be in the gym working out not feeling exhausted, I want to be on holiday, I want to be me…. Not this shell of a girl who feels like I’m not good enough at anything. That feels ugly, fat and useless on top of feeling just yuck I feel like I can’t concentrate on anything for very long at the moment.

Moan moan moan. All I do is moan….. So I need to seriously stop this downtrodden thinking, it does nothing for your spirit, your positivity, your toxin free environment … But as I think I have said from the beginning this toxin free journey is that…. I’m not perfect, I’m giving it my best shot and don’t have all the answers, and probably never will, but I can try!

So at some point I am going to figure a way of making this blog more about helping others than about my stupid rants of how emotional I am and tired. I need to sort my life out! Not today though …. I’m ranting!

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Tears and tantrums, turned away from a spa, and a heat wave.

So i haven’t written for a while as I had a bit of a wobble last week, I went running and just poured with tears and returned home to cry some more, Cass the ever compassionate girl she is told me I’m not pretty when I cry and to stop it! She then went on to sit on the phone to help me try to sort some funding streams as statutory sick pay of ยฃ88 a week is pretty hard to live on to be honest! So hopefully some of the phone calls will have paid off and if they have ill treat her to BBQ!

Two days after this breakdown me and Cass headed to Stratford manor spa for a relaxing break, and I filled out my forms, ticked all the boxes, and got changed then walked to my massage like five minutes after changing into my swimsuit ( I haven’t owned a swimsuit since I was about 16 … Always bikinis! )

So I rocked up to the treatment room to be told I couldn’t be massaged, apparently they will spread the cancer, when I pointed out the guardian had just this week had an article saying this to be untrue and that Mcmillian offer massage as part of treatment, I was still told no and subsequently sobbed like a child, because on top of this the therapist couldn’t give me a facial or any other treatment, I felt like a social outcast that is contagious. You won’t catch cancer from me and even offering to call my doctors wasn’t good enough they wanted written clarification, which they don’t state on their website and don’t mention on the phone when you book. I’m not saying they should say do you have cancer or anything like that but maybe a simple… Do you have any medical or physical conditions currently being treated by medical professionals or physiotherapists etc.then the spa could look into it and call you back before you drive all the way to your destination. I was so ashamed, and poor Cass had driven us all the way there and refused to stay for her treatment because I couldn’t have one. I suppose walking out to her with tears in my eyes might not have helped. We even had to argue to get a refund! I mean first of all they said they would give me a goodie bag, and never did then I had to argue to get a full refund and not just a part refund. They just made the whole event so shameful and I will never go back there! Or any of the q hotels. They shamed me so now I will shun them!

So after this, we went to see a newly married friend instead and then went out, and yes I had a few drinks because I had been traumatised that day! 2 days later I had a day and a half migraine and didn’t get out of bed for a day!

So now a few days on and a meet up with a good friend, a comedy show (dapper laughs) and the purchase of a really tall fan later I’m feeling better. Headache is gone, and im melting in the heatwave but managed to sit outside and catch a little tan with my factor 30 on!

Now to count down the days to blood tests on Thursday and chemo Friday, I think Friday I’m going to ask about my hand again as it’s still sore and something is definitely not right with it!

Oh and in excitingly positive news my hair seems to be growing back, I look like a fluffy baby duck, but it’s exciting! What isn’t exciting is hearing that chemo – t that I start in 3-4 weeks is the one that makes you loose your eyebrows and eyelashes and makes you ache! So I have one more FEC (my extra one) and then the t starts.

Off I go now! I need to watch my programme ๐Ÿ™ˆ ……my kitchen rules australia…. Seriously addicted to this and love island! And I don’t care who knows!

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Blog Post.ย 

I started writing a blog yesterday about my day! I didn’t get past the first paragraph as life got in the way, and the interruptions of it. You know what, I wouldn’t change the interruptions for anything! 

But basically yesterday I got Late   drafted on to a look good feel better workshop, it’s 2 hours and you get to sit in a room with other women undergoing treatment and get taught to put make-up on to feel better. And if I wasn’t all toxin free I would be super excited by the vast quantity of makeup and products you get! Seriously it is amazing! My only issue is it isn’t paraban free or toxin free but I am going to check them through my think dirty app and see how they all rate. It is a lovely gesture that all these companies: Lancรดme, rimmel, Bobby brown, No7 etc. give make up, removers, moisturisers even perfume is given! Into the bags! I do wonder if they do it as a corporate item to offset the bad feelings from all the toxins and carcinogenic chemicals they put in it? And I wonder if in a few years time it will be stopped as it could be hindering women’s recovery? I’m definitely overthinking this I know! But I do honestly find it interesting to think it on a personal and corporate level! 

But the main thing other than the makeup tips and goodies I got was meeting other ladies that are all undergoing treatment. 

It was nice to talk and hear other women on the same journey talking and I think It is something I need to do more! Talk in person with other women undergoing treatment, as I love my friends and family but it’s so easy to talk to others facing the same treatment, how they are doing, feeling lucky I can taste my food and they cant and other such comparisons! 

I would have felt even more normal if it hadn’t been pointed out by one lovely lady that even in this circle it is odd to see such a young lady with ‘IT.’

Side notes: 

I can’t stop eating. 

I’m getting fatter.

This PIC line is ugly, annoying and makes me feel like a patient. 

I’m scared my hair will grow back fuzzy, weird and grey.

I need to focus. 

I repeat I need to stop eating!  

 

Chemo 3, Day 5.

So I’m not honestly feeling my upbeat self, I appear to have no energy and just feel really low and if I am honest a bit depressed. I do think it is mainly in my head, the old black dog as they call it, rearing its ugly head.

Partly I think it is because I know I want to pick up a book and read, but the motivation to do it seems to elude me lately. I have these pains in my cheeks, jaw, shoulders and neck that just feel weird, it was like last night I could feel the chemo circling my upper parameters of my body, and I started half sleep, half wake dreaming of my grandad. It felt strange this morning to know I had dreamt of being a child stealing my grandad’s roll up cigarettes and hiding them, it was, I think, the only time I heard him tell me off and everyone panic ๐Ÿ˜‚ but that memory soon changed to his last moments and so today I feel like I want to cry but can’t seem too.

I don’t really try to pretend I don’t have to deal with this situation, I don’t think of myself as sick. And truth be told I could tell you a dozen examples of people, including complete strangers that tell me or others that I don’t look sick. What I do find difficult is at the moment people seem to ask is the treatment working? And I know people ask questions (so are you getting better? Is it working? ) because they care. But the hospital don’t test you or tell you those sort of things, you just have to have blind faith that it is. And mostly I don’t think about it. But since this PIC line has gone in I have felt more like a patient and less like me. But maybe that is just the first few days of chemo 3 and adjusting to this thing in my arm.

I have seen a few Facebook posts about the new breast cancer now campaign and if I am honest I don’t like them. I suppose it is just to close to home, and real. They actually called me about doing it, but on requesting if I would show my scars I politely declined that and I am very glad I am not involved. Not because I don’t think it will benefit the future but for my own personal reason.

The fact that I keep seeing all the figures about death rates, secondary cancers and such at the moment is hard. And I don’t much enjoy that side of this whole process. I have and will continue to try to focus on the positives…. Like…… I don’t need to buy shampoo, or shave my arms etc. but some days, I just feel like curling up and not talking, not socialising, and not leaving my bed. For no other reason than CANCER SUCKS.

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Selfie stick, Chemo number 3 and PIC Line going in!ย 

Number 3 …. Half way there… Sort of! They have added an extra FEC cycle. Reason: I didn’t get enough of the Epirubicin, as it leaked into my hand In round 2 (sounds like a boxing match when I say it like that) and then what I had was counteracted by the antidote. 

So I just had a full round and then next time I am having a smaller FEC Cycle (full 100ml each time but 75ml instead ….I think… Don’t quote me). 

Today went well! Which is good I am now just lay in bed chilling, trying to rest and then fall asleep after I have written this knowing me! 

I caused mayhem again! As ever! You honestly wouldn’t believe me when I say the male nurse in  there has now told me and Cass He is booking my next FEC  treatment off! ๐Ÿ˜‚ 

I told Cass to make me a tea and herself a coffee as I did yesterday when I was in the waiting room to see my onchologist after my minor surgery – not sure I can really say it’s surgery but an insertion. No that sounds bad we will stick with surgery and I’ll explain that later! But anyway, I digress, she got told off, she’s not meant to touch it. And the man (really nice guy – they all are in there to be honest) said she cant touch that laughing and I was like I did yesterday, I’m not telling you who told me I could though ๐Ÿ˜‚๐Ÿ˜‚). That is probably funnier in my head than in writing and reading. Any which way I got my cup of tea! 

This time instead of spending a small fortune on food and drinks we had the provided tea and coffee rather than Costa. And brought our own homemade chicken, avocado, salad (mine in a wrap… Cass no wrap… I know I was naughty having a wrap but it tasted so good!) 

So chemo went well, as ever I had a sneezing fit at Epirubicin, which is completely wrong… Everyone else sneezes (if they react) to a different drug of the 3 but not me! So my wee is now red already and my mouth tastes of iron and I’m just hoping all the anti sickness drugs work on the full dose of chemo I had as well as they did on the slightly less one last time! 

I tortured the ward with my selfie stick everyone laughing at me, but I tell you there were a few converts that want one now I reckon. I even used it as a devise to poke my anti-sickness drip to see what it was (I can’t remember, already!)   

  

Anyway, as you can see my chemo now goes through my upper arm and not my hand. I have a brightly coloured contraption sticking out me, but it is all wrapped up so no scaring any small children and I opted to wear a tube grip over it so its just not so unsitely, I know I talk all these selfies and post them on this blog and Facebook, Twitter,….. Ok and  Instagram ๐Ÿ™ˆ๐Ÿ˜‚  but I’m quite a paranoid person so have real … ‘Are they staring at me?’ Issues! I like to be in control of what people see, I guess, who knows how my subconscious psyche works! 

So to have the pic line put in I had to have a local anthestic, I get laid on a bed and they guide a pic line to your heart by ultrasound then check it with an X-ray then push and pull it around a bit more and then off you pop all done. It is quite strange feeling all the pulling and pushing. But I had a really nicer radiographer who was chatting to me (distraction technique) about holidays. And as those close to me know I’m always happy to talk sunshine and tanning (and food). 

So it’s in, it’s gross and I dread it coming out, but true to the many people who said it to me… Chemo through that was easier. 

 

So that picture above is what is looks like inside me and this is what I have.  

My line without a dressing. But it’s like this for all of 2 minutes when it gets cleaned with alcohol. 

     That’s how it looked from out of the X-ray department. And then the chemo nurses bandaged it even further.  

Then below is how it looks after the chemo nurses bandage it up a bit further and I just Pop a bit of tube grip over it. Happy days. 

Well I’m off for a sleep now! ๐Ÿ˜ด  

Chemo 2 day 2! And antidote 2.ย 

I’m back in hospital, no one panic! It’s planned. The chemo leak in my hand needs three treatments so I’m back and I have a bed, which is luxury compared to the normal chair. Although I say that but I quite like the recliner chairs! 

Cassie at my side as ever, i think she should have a career allowance at this rate. 

Cass has had to keep my arm warm while the medication goes in its so cold, so I asked for a heat pack like the chemo ward give me. So now it is more comfortable. The low temperature 2 degrees is too cold to bare without a hot pack on my arm. It creates a stinging cold arm that is just unbearable. 

Well a summary of chemo 2 … Apart from the leak it went really well! And the sleeping tablets and super strong anti-sickness have done the trick so far!

And I’m up and about and not been sick today! I am so pleased with Dr Price for sorting out my medication! Thank you is all I can say!  

I’ve had a green smoothie this morning made from celery, courgette, half lemon and spinach … All organic with some added vitamin c powder and it tasted lovely! Nice and fresh! 

I followed this with a multivitamin and prebiotic enzymes and digestive enzymes. So I’m feeling super health compared to the last lot. 

I’ve been for a lovely walk this morning through the woods with Fiona, Cassie, and locki the dog that was fun and not strenuous although I had a sit down after a little while. 

  
But I’m taking it easy as I have to have 3 antidotes in me which are almost like a form of chemo themselves says the nurse today. 

So I’m vowing to eat better this time round than last chemo all thanks to the new anti nausea/ sickness drugs and I’m going to get lots of fresh air this time straight away. 

I will feel healthier with this one! I refuse to be unhealthy and toxic, the only toxins going in me now will be chemo!

 

check out that beauty of a hat, made by the wonderful Sean O’connell!
 
On a super exciting positive note I got a new Micheal Korrs head scalf and Cass got me some new trainers for my birthday and to train her in the gym in ๐Ÿ˜๐Ÿ‘๐Ÿป 

Chemo 2. What a Long Day.

Omg! So I had a 9.30am appointment, and should have been away from the hospital at around 12 if not before….. Instead I left at 6.45pm! Without the full treatment.

They put the canulor into my right hand but near to the thumb vein and unfortunately after the anti-sickness and flush was put through, it must have moved some how, or was never in, I don’t know I’m not a nurse, but this meant that the first lot of chemo created the sneezes again but it also started to go really cold under my arm so they were getting me a heat pack to warm it up and puff out of no where it swelled up around the canulor.

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So due to this two doctors (one my oncologist) came to see me and a few nurses. And it was decided to cool it down for a while, take it out and transfer the other two chemo drugs to my left arm, even with my lymphs out in that arm, I was recited some research for that it should be ok and I trust my oncologist to do the right thing.

So I had another canulor put into my left arm this time, and off we go again, and sailed through the rest of chemo, then I had to wait an hour or so for the antidote to the stray chemo in my bodily tissue, as apparently the worst case scenario equals a skin graft so although my swelling went down by the time I was leaving they still need me to have 3 doses.

I had the first today and I have 1 Saturday and another Sunday.

Plus the White blood cell injections start tomorrow, and I have extra anti sickness and sleepers to help the first three days nausea. And some tablets for my mouth as it got so sore and full of ulcers! So all in all they are hoping to make chemo 2 easier than the first!

I am praying I am not sick tonight, and that the new regime for anti-sickness helps me and I just sleep through it so that I can eat well the first week.

Bonus is that whilst there from 9.30 -6.45pm I read my book and had a laugh playing the Keith Lemon hide your teeth game with Cass, we did America, and yes I won as she laughs to much!

I also spoke to some nice people around me. One lady even told me I looked like Jesse J with my scarf on, and the people next to me wanted to know where it was from for a friend starting treatment soon. So that’s all thanks to Cass as she bought it me for my birthday, and I’m rocking it! So now I want more scarfs! ๐Ÿ˜‚๐Ÿ˜

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Officially a Baldylocks.ย 

So yesterday was my 31st birthday and I had my pre-chemo blood tests and all in all a nice day, it was pretty chilled but good. And I got spoilt by all! I’m definitely a lucky girl!

Today I went out in my scalf bought for me by Cass for my birthday to see Dionne to get it shaved from the grade 3 to a grade 1. 

   
 So it’s so much better but still a little tufty and sort of like Velcro! And when lay of on my side today when I had a sleep this afternoon, (I was exhausted today … God knows why it just hit me!) 

So this evening after my parents left and I had eaten lots of cake, handballs by my mom and nephews, Cassie shaved my head! Yep full on shaved it! I now have a totally smooth head! And no it wasn’t liberating…. But it is nice and smooth and so that is surprisingly pleasant! 

  Excuse the fact I have no make up on please. But you get the picture! I have a smooth bald white head! And yes I have a baldy tan line! ๐Ÿ˜ฉ๐Ÿ˜‚ 

Waking Up Is Hard To Do.ย 

i know I try to be Little Miss Positivity, but do I feel like it this rainy morning? … NO! 

I am sat with my hood whilst inside incase anyone sees me through the window, as I feel embarrassed about the state of my hair and the future state of my head! 

I tried to prepare myself for it, cutting my hair short,  but honestly, I feel pathetic. I know I shouldn’t feel sorry for myself, but I do! I don’t want to, but I really feel yuck about myself. I’ve gained weight, I have no hair and because I threw most of my make up away I don’t have much to play with and all my earrings make me feel like a drag queen! 

It doesn’t matter how many people say to me you knew this was going to happen… It doesn’t help! And how many people tell me beauty comes from within…. Does it? Tell that to the organic make up site I went on last night and spent ยฃ100 on to make my face look pretty! 

This thug look is just embarrassing I feel like I need to hide. I started driving to my hypnotherapy and yoga session this morning at the Haven,  but got stuck in so much traffic it wasn’t happening,  so I turned around and headed to Tesco to stock up on organic goodies.

Whilst on the way some men where walking and looking into the cars so I swiftly put my hood back up over my shaved head and hid, same in Tesco’s I kept my hood up and prayed I didn’t see anyone I know! Sad but true. It’s just so bizarre how my hair coming out and now waiting for it to progressively look worse and tufty then to a shiny bald head, has really knocked my confidence to even do the basic things … Like walk around the shops! 

Honestly, I just want to curl up today and hide. So first thing is first! I’m going to post a picture of my baldy head… Then it’s out there isn’t it… Everyone will have seen it and hopefully I will get some relief from ‘outing’ my head! 

… And then I will do what I know I do best …dust myself off and get on with it. So next order of the day is to dress myself up including my wig and go to lunch with Zoe, then I will take Cassie to the gym and put her through her paces, and although I can’t do much, I can do little bits here and there and just get used to being in the gym again. 

My question of the day is how do wigs react to rain? I don’t want to ruin it? Anyone know if I should avoid getting this wet? Well, I guess I’ll find out!  

full organic fridge!
 
my hunter gear hoody hiding my head, thanks for giving me this hoody Jack!
    
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on the move, with my shaved thug head
 

Well That Esculated Quickly.ย 

So in my last blog on Thursday I said how my hair felt like it was starting to come out. A little too much was in the brush and my head / hair was starting to hurt! Well, it’s Sunday and I’m not going to lie… As I knew I was going out I didn’t wash my hair from then to now; in a shameful attempt to keep the hair on my head! 

Well I had a lovely weekend! Bought another wig! A brown one to accompany my blonde one I got Thursday (as well as two hats). 

I even road tested my blonde locks on Saturday night and felt amazing! It’s bizarre how much good or bad hair can make you feel! And when you are trying to keep your hair on your head and the wind and everything scares you, you don’t feel great about yourself! Well I didn’t anyway! I felt unsure, embarrassed and ugly to be honest! 

Wearing a wig on Saturday night made me feel me again, blonde long locks and it wasn’t too hard to wear… I think this is thanks to years of wearing clip in extensions; I have literally had hair and head training for cancer treatment! 

But the Sunday night wash was a turbulent affair! I brushed it first, and loads came out! And then I gave in and went for it and ran my hair under the shower barely rubbing it, but fatel mistake I tipped my head upside down! I do this sometimes when I’m a bit stressed … It makes me feel better! Which it did make me feel better, until doing this created the biggest knot in hair history amazing considering how much hair I have lost! 

So we (Cass and me) tried to condition it out, brush it out, rewash and deep condition it, comb it, blow dry and comb it and finally cut it out! Yes that happened! 

My head actually really hurts so i have begged Dionne round to shave my head this evening! So for my 31st birthday on Tuesday I will be bald! 

I am now a grade 3! WTF! I feel hideous and I look like a little thug! But at least it hurts a bit less! Thanks to Dionne for taking care of my head! 

It is all a bit emotionally to be honest and hard to deal with. No matter how you prep yourself for the fact it is only hair, it’s only hair but, it is your identity and being bald was never on my to do list of hair styles!  

And what I really want to know is why is the hair on my head falling out and the hair on my arms is just there … Strong and firmly in place! WTF!

Anyway, when I have a bit of make up on I will show my shaved head! I’m currently not up to showing off my head-style!   

All gone   

 

  Blonde in Blackpool 

Me, Cass and my wig ๐Ÿ˜๐Ÿ˜‚