Realisation.

So I woke up this morning, as you do ๐Ÿ˜‚ (funny aren’t I!๐Ÿ™ˆ๐Ÿ˜‚), and had a sort of realisation. This last week since having my new chemo last Friday called Docetaxel (tax for short!… It’s in all the forums and Facebook groups! I had to ask to be sure though ๐Ÿ™ˆ),I have felt awful, I mean it, every cell in my body has ached, I fell over on the weekend and that didn’t help as I cut my hands, bruised my ankle and cut my knee, but on top of that I have just honestly felt awful.

I’m not one for pain killers but I had to take them to just ease the pain to sleep. My head, throat, teeth, bones, muscles everything seriously everything hurt I actually cried with pain one night because I couldn’t feel it easing it just wouldn’t shift. But a lot of it has and although my long bones ( collar bones, back, thighs, rib cage ) and head still ache, mostly it has calmed down and is manageable! All those DOMS days from the gym have put me in good practise for this battle.

Anyway, back to my realisation, so I’m not painting a pretty picture of the last week really, but on top of this money became a big worry and is ongoing for me, so on top of the aches I was trying to help sort someone out, worry about my financial position and just deal with you know those random situation where you are involved and just help and do what you feel is the right thing.

So cryptic message complete ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ and Once again back to the realisation……this morning I woke with a smile and a thought and posted it on Facebook to more than a hundred likes (I was really happy about that! So thank you to my friends who liked it! As mostly what I say on my personal page is nonsense)….

…. Here it is…….. “I’m a pale, bald little chubster that aches like a granny…. But I have never been in such a good head space! I have such amazing people around me!”

It’s true, all of the above is true, I’m not happy with my weight or how I look but I seriously feel happy. I ache, I hurt but I’m happy and it’s weird and amazing to feel like it!

And following on from that I posted on a breast cancer forum………. ” I’m going to say this crazy thing that probably makes half of you want to punch me in the face but honestly apart from the pain, the aches, being bald, pale, chubbier than before, flat broke, I have come to realise how lucky I am. When the money stress and pains hit the background I stop and think how amazing the people I have around me are. And how amazing we all are. I honestly feel more comfortable just being me. Not trying to be a tanned blonde bikini model I once was. I just feel content that I am me and people like me. I don’t have to do anything to make them. I can be miserable and horrible somedays and people still want to be my friend. I am officially being real for the first time ever! Xxx love you all xxx big love for Saturday go treat yourself to a break with a brew and cake today xxx๐Ÿ™ˆ๐Ÿ˜”

And again I got nearly 100 likes and lots of comments, lots of women agreeing with me and high fiving me rather than wanting to punch me.

Because it seems I’m not the only one to have the penny drop…… That life is for living, for the people we have in it ….. Not for trying to impress, trying to be a CEO and be a powerful workaholic it is for making memories. It is for laughing and smiling and making laughter lines around your eyes.

What this god awful disease has done for me, is give me perspective, I was near my break point when I got diagnosed, I had broken the year before and I was ready to break again, and cancer took the only thing I felt I had left…. My health and my body.

I will never look in a mirror and see the girl I once was, she has gone but I’m no shell of a girl crying in a corner, and I realise just how much I needed a reality check…. And I have got it from the highest order. I am finally real.

I am grateful to all the amazing people around me, to my family to my chosen family (friends), acquaintances that give support, other ladies battling on, to everyone that supports me and other people battling on and those that haven’t well I literally don’t care. I haven’t overanalysed why some people don’t like my posts on social media, why certain people don’t seem to bother to get in touch, I truly don’t care. Because the friends that do Are the ones I want. The people that care are who matter.

And I matter, I matter whether I am tanned, blonde bikini model and athlete who works a high powered job with a good salary …. Trying to make it to the top of the corporate world…and I matter as a bald, pale, chubbier, non-worker ( I’m on sick leave so one day I will be back at a desk, but not for a little while).
I am finally able to like myself more than ever, whether I have kids or I don’t ….. I know plenty of kids so if I don’t get my own I can screw up everyone else’s ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ my sister better watch out I’m blatantly going to be the bad aunty ๐Ÿ™ˆ๐Ÿ˜‚)

Of course I have my dark days but they are fewer and farer between than ever, they go quicker than they did. And of course I stress but it takes more, and I do stress less. But I’m present, I watch a film and watch it, I eat food and enjoy it, I fully appreciate the trees, the blue skies the 5 minutes I got earlier to put a face mask on.

And although I am mostly sleepy, or useless I feel happier in myself and there is no amount of money in the world that could have bought me this feeling of pure, unadulterated blissful realism.

Sometimes you have to go through a whole load of crap, to appreciate what you have.

But if anyone can learn from my lessons….. Enjoy yourself, love yourself and be real to yourself. Take five minutes to be grateful for what you have today. Xxxx

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Tears and tantrums, turned away from a spa, and a heat wave.

So i haven’t written for a while as I had a bit of a wobble last week, I went running and just poured with tears and returned home to cry some more, Cass the ever compassionate girl she is told me I’m not pretty when I cry and to stop it! She then went on to sit on the phone to help me try to sort some funding streams as statutory sick pay of ยฃ88 a week is pretty hard to live on to be honest! So hopefully some of the phone calls will have paid off and if they have ill treat her to BBQ!

Two days after this breakdown me and Cass headed to Stratford manor spa for a relaxing break, and I filled out my forms, ticked all the boxes, and got changed then walked to my massage like five minutes after changing into my swimsuit ( I haven’t owned a swimsuit since I was about 16 … Always bikinis! )

So I rocked up to the treatment room to be told I couldn’t be massaged, apparently they will spread the cancer, when I pointed out the guardian had just this week had an article saying this to be untrue and that Mcmillian offer massage as part of treatment, I was still told no and subsequently sobbed like a child, because on top of this the therapist couldn’t give me a facial or any other treatment, I felt like a social outcast that is contagious. You won’t catch cancer from me and even offering to call my doctors wasn’t good enough they wanted written clarification, which they don’t state on their website and don’t mention on the phone when you book. I’m not saying they should say do you have cancer or anything like that but maybe a simple… Do you have any medical or physical conditions currently being treated by medical professionals or physiotherapists etc.then the spa could look into it and call you back before you drive all the way to your destination. I was so ashamed, and poor Cass had driven us all the way there and refused to stay for her treatment because I couldn’t have one. I suppose walking out to her with tears in my eyes might not have helped. We even had to argue to get a refund! I mean first of all they said they would give me a goodie bag, and never did then I had to argue to get a full refund and not just a part refund. They just made the whole event so shameful and I will never go back there! Or any of the q hotels. They shamed me so now I will shun them!

So after this, we went to see a newly married friend instead and then went out, and yes I had a few drinks because I had been traumatised that day! 2 days later I had a day and a half migraine and didn’t get out of bed for a day!

So now a few days on and a meet up with a good friend, a comedy show (dapper laughs) and the purchase of a really tall fan later I’m feeling better. Headache is gone, and im melting in the heatwave but managed to sit outside and catch a little tan with my factor 30 on!

Now to count down the days to blood tests on Thursday and chemo Friday, I think Friday I’m going to ask about my hand again as it’s still sore and something is definitely not right with it!

Oh and in excitingly positive news my hair seems to be growing back, I look like a fluffy baby duck, but it’s exciting! What isn’t exciting is hearing that chemo – t that I start in 3-4 weeks is the one that makes you loose your eyebrows and eyelashes and makes you ache! So I have one more FEC (my extra one) and then the t starts.

Off I go now! I need to watch my programme ๐Ÿ™ˆ ……my kitchen rules australia…. Seriously addicted to this and love island! And I don’t care who knows!

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