The Many Hairstyles of Cancer! #worldcancerday

 

This is my video of some (not all) of my wigs, scarfs, hats, and looks through my cancer diagnosis and treatment for #worldcancerday. http://bit.ly/cancerhair

I have put this together to try to raise awareness for Cancer and treatment and how it affects you and how you can stay Positive throughout the battle!

I am currently raising money to create a website and App to help people after a cancer diagnosis and treatment get back to ‘normal life’, but I don’t want it to be normal, I want them all to feel better than ever! This website and app will focus on getting fitness back, a healthy cancer prevention diet (that will help with weight loss too), and mental strength and stress reduction. I will also give tips on beauty, and toxin free products that can help to reduce toxicity and illness!

Please support me by donating to my go fund me page https://www.gofundme.com/transformationapp

and like me on social media:
https://www.facebook.com/MelindaCookseyToxinFreeLiving/
twitter: @MelindaLou1
Insta: @ToxinFreeGirl
Blog: https://toxinfreeliving.org/
Song credits: Fight Song, Rachel Platten

Sunshine is coming. 

  
So, I’ve been really melancholy the past few days, and if I haven’t been ‘meh’ then I’ve been raging or if I haven’t been raging I’ve been sick. So this last week really had taken a turn for the worst as I start the 5 year journey on tamoxifen. 

Can I handle it? Well honestly I’m not sure. But I’ve only done 6-7 days so I’m giving it a chance. I’ve had the sickness and headaches that was so bad one day this week I didn’t get out of bed apart from to be sick. 

Poor old Cassie had to be my nurse again, running off to the chemist for migrane tablets to try to take the edge off the pain. It’s made me feel like I’m never going to be free from this disease and its side effects. 

I look at my finger nails and they are pulling away from the beds, my head and stomach have finally settled but I feel like I’m recovering from the flu, all fatigued and emotional, when at the start of the week I felt lovely. I mean I felt full of energy and its like its all drained away and all I feel capable of is to lie down and rest… Wrapped up as I’m freezing (but in layers so that when the hot flashes hit I can get cool!) 

I shouldn’t moan I’m a mere handful (large handful) of days away from a sunshine holiday and I honestly can’t wait to go. I can’t wait to be laying by the pool and chilling out. 2 weeks in the sunshine is definitely needed after this year! 

I’ve been 70/30 good / bad eating most of my 30 is the odd drink to be honest and pasta… Not that pasta is bad but it doesn’t fit with the keto diet I like to practice to reduce my chances of the dreaded C coming back plus it’s what makes me feel the best in myself. I practice a moderate keto diet so it’s probably more of what you would called a balanced diet that favours vegetables and fats rather than favouring protein or complex carbs. I think I should probably address it as a balanced diet from now on as sometimes when things are labelled people fear what you are doing is a fad diet or this or that but my current eating habits have come from the path of a former strict keto diet. 

But this style of eating has meant that even though I’m on medication and I can’t train how I used to, I have still lost 7ibs in 4 weeks and am safely under the 11stone milestone I wanted to be. Now for a couple more weeks I want to tip the balance back to 80/20% so 80% good rather than 70 and see if I can loose another couple of pounds. The new medication I’m on, tamoxifen, can cause weight gain but I’m hoping that won’t happen to me. I’m pretty sure it will be holiday weight gain not medication! 🙈

Right I’m going to move my butt cheeks and start digging out the summer clothes! A summer holiday in winter… This is going to be weird!  

   
Training face from earlier in the week! 
  
Nails from a couple of weeks ago… They look even worse now 🙈 but hopefully they will sort themselves out. 

I finished active treatment.  

So it’s approaching Halloween and last week I finished active treatment. And nothing feels any different apart from I don’t have to go to hospital. It’s one of those things you wait for and think the world is going to be amazing the day I finish treatment but it isn’t. The world hasn’t changed but over 2015 I have. 

A magic grey cloud has not been lifted from me and I wonder if my body’s functionality (weight is a totally seperate issue) will ever actually return. My brain is useless my aches and pains from simple things are ridiculous, my fingernails appear to be starting to fall off! (Yes fall off now 7-8 weeks after my last chemo!) and well will my periods and womanhood ever return who knows. 

On a day to day basis I’m generally happy, but I have to admit since I finished treatment I have flat out ugly cried twice (that’s in the space of a week). It’s a funny old time where I sort of want recognition for battling on, for smiling, for getting through it and you want to recognise and give thanks to those who were there but you don’t have the words or the ideas (as your brain doesn’t work) and on top of that you know you have to start picking the pieces up of life and move forward but there is a fear that you can’t. Or I suppose there is the lack of motivation to want too. 

I am very grateful for all my flowers, cards  and well wishes I have received!  

 
It may only take 10 seconds to post a well done/ hooray on Facebook but it is a great boost and I appreciate it. I even had a surprise meal organised for me by Cassie which was lovely and a total surprise! And the food and company was lovely! And I’ve never had a surprise meal or a party before! I know 31 and no big parties but I was always worried no one would come if I had one so best to avoid the disappointment! So a meal for me, with balloons (I love balloons) was brilliant! Thank you Cass. 

  
So now it is time to stop the little random moments of upset that creep up on me. 

Next step… Appointment for hormone pills ( can’t wait for that one!) 

I’m definitely in a mehhh state for breast cancer awareness month (October) and wonder if I will be like this every October when people are throwing tea parties and walking with pink tutus on, especially after reading an article today from a lady with similar thoughts. 

But on the other hand I know my life through my cancer-year has been a happy one emotionally, I barely got upset, I relaxed more than I normally would even when I was aching my mind wasn’t stressed, and I had amazing people around me so why  am I feeling a bit off now I have finished? 

Oh well, by this afternoon I probably won’t even remember I felt like this (chemo brain) ! And as soon as this red patch from the radiotherapy is finished I’m going on a sunbed to get warm to my bones! 

  

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It’s true, you probably aren’t meant to say it. I am good, I am a winner, I am strong… But I am! I know I’m not meant to, but I find myself tonight watching a film that made me cry, AGAIN, seriously how can every film seem to have cancer in it, seem to have family and friends and seem to make me cry. It’s not normal. Or maybe, just maybe it is.

I am scared of chemo 6. Tax 2. I admit tax 1 got me, it had me in bed for what felt like a week but was probably more like 5 days. Not straight away but as the oncologist said on Monday just gone, when the steroids wear off the pain starts, “can you do this?” Of course my answer is “YES”. My answer has always been yes to hard questions, I’ve had my fair share of pain in the past. And I’ve always gone at it, I’ve always dealt with it, quietly and appropriately.

God, I would loose a race (I used to run fast on the track) I’d spend the next two days in bed sobbing I hadn’t run to my potential and by Tuesday, my first track session, I would get up and arrive at the track for 6.30pm I would take the banter of the group (God how I miss them all!) and I would warm up and coach (Rog) would say to me “a technique session or a speed endurance session” the answer… Always….. A speed endurance session, I would train so hard I would be sick half way through, or have an asthma attack and have to be helped to breathe and I would stop being sick or regain my breathe and be back on that track. That’s me……. That’s melinda….. That is an athlete….. That is a fighter…. ( all athletes respond this way, well I’d say most, a tear shed, then a training session to make you feel pain so hard in your legs only an athlete can understand ….. Or so you think….. Chemo is a deeper pain, it hits your bones your muscles, teeth, cheeks, finger nails, but all my life I prepared myself for pain.

Running isn’t just it, I remember being told my sister was the pretty one, my sister was the clever one, I was the sporty one…. When probably she was all of them but God I tried, I studied I would be up until 3-4am studying to get my psychology degree, my masters in marketing, I then went on to do bikini competitions (blatantly to get some sort of recognition for being pretty) and never placed out the top 2 except once I came 5th and once I came second call out in nationals (with a home made bikini, and I knew no one p, I had no influence, I just worked my ass off) so I beat all the things people told me I wasn’t, with obviously my battles along the way!

What does this have to do with crying at movies and being scared about my next chemo and how much it hurts, well deep down I know. I know that I wouldn’t have it any other way, I’m the fighter, I can take the battle, and emotionally I couldn’t cope seeing someone I love, someone close to me go through it.

I applaud every single person that lets me tell them I’m having a crap day, that I’m in pain, stressed, upset, that lets me cry to them because 90% of people I know, don’t see the fear, or the pain, they don’t need to see it, because what do I gain from telling them, pity, yeah I do want it sometimes, attention, yeah i do want that sometimes too, but I wasn’t raised that way. And good old British working class values stick with you.

My good old British response to most people “I’m fine/ I’m good, thanks” some times I say “I’m a bit tired” but that’s as far as it gets to most, because I’m a fighter and a winner and winners and fighters don’t moan, they get on with it and in the words of Nike they ‘just do it’.

I have had so many battles in my life, not just on the running track, not just studying, but I am too much of a winner to give a blog all my pain, all my suffering and all my joy too, as let’s be honest probably if I’m lucky 12 people read it, that’s if I’m lucky read!

One day I’ll write a book, one day I’ll get 100 comments on a blog, or 1000 likes on my Facebook page and Instagram, who knows! Crazier things have happened! But while I write this, and I live through this, at least I know I’m the right girl for the job, scared …..f&£k yeah! A quitter….. NEVER!

So, Chemo 6 tomorrow, a steroid induced hot flush….. A dread in my belly, a tear in my eye, and a fight in my soul….. So here goes the next 7 days. To my rock – cassie, to my mom and dad, sister, bro -in -law, nephews , to my amazing friends – you know who you are…. I’ll make a list when it isn’t midnight and I need to sleep ( but needed to write this blog off my head, that’s been spinning inside for the last hour of the film) , to my chemo buddy, to my pink sisters, to my well wishers, to the good people of the world…. Let’s just keep fighting and winning our battles, doing the right thing, and being water (Taoism).

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Realisation.

So I woke up this morning, as you do 😂 (funny aren’t I!🙈😂), and had a sort of realisation. This last week since having my new chemo last Friday called Docetaxel (tax for short!… It’s in all the forums and Facebook groups! I had to ask to be sure though 🙈),I have felt awful, I mean it, every cell in my body has ached, I fell over on the weekend and that didn’t help as I cut my hands, bruised my ankle and cut my knee, but on top of that I have just honestly felt awful.

I’m not one for pain killers but I had to take them to just ease the pain to sleep. My head, throat, teeth, bones, muscles everything seriously everything hurt I actually cried with pain one night because I couldn’t feel it easing it just wouldn’t shift. But a lot of it has and although my long bones ( collar bones, back, thighs, rib cage ) and head still ache, mostly it has calmed down and is manageable! All those DOMS days from the gym have put me in good practise for this battle.

Anyway, back to my realisation, so I’m not painting a pretty picture of the last week really, but on top of this money became a big worry and is ongoing for me, so on top of the aches I was trying to help sort someone out, worry about my financial position and just deal with you know those random situation where you are involved and just help and do what you feel is the right thing.

So cryptic message complete 😂😂😂 and Once again back to the realisation……this morning I woke with a smile and a thought and posted it on Facebook to more than a hundred likes (I was really happy about that! So thank you to my friends who liked it! As mostly what I say on my personal page is nonsense)….

…. Here it is…….. “I’m a pale, bald little chubster that aches like a granny…. But I have never been in such a good head space! I have such amazing people around me!”

It’s true, all of the above is true, I’m not happy with my weight or how I look but I seriously feel happy. I ache, I hurt but I’m happy and it’s weird and amazing to feel like it!

And following on from that I posted on a breast cancer forum………. ” I’m going to say this crazy thing that probably makes half of you want to punch me in the face but honestly apart from the pain, the aches, being bald, pale, chubbier than before, flat broke, I have come to realise how lucky I am. When the money stress and pains hit the background I stop and think how amazing the people I have around me are. And how amazing we all are. I honestly feel more comfortable just being me. Not trying to be a tanned blonde bikini model I once was. I just feel content that I am me and people like me. I don’t have to do anything to make them. I can be miserable and horrible somedays and people still want to be my friend. I am officially being real for the first time ever! Xxx love you all xxx big love for Saturday go treat yourself to a break with a brew and cake today xxx🙈😁”

And again I got nearly 100 likes and lots of comments, lots of women agreeing with me and high fiving me rather than wanting to punch me.

Because it seems I’m not the only one to have the penny drop…… That life is for living, for the people we have in it ….. Not for trying to impress, trying to be a CEO and be a powerful workaholic it is for making memories. It is for laughing and smiling and making laughter lines around your eyes.

What this god awful disease has done for me, is give me perspective, I was near my break point when I got diagnosed, I had broken the year before and I was ready to break again, and cancer took the only thing I felt I had left…. My health and my body.

I will never look in a mirror and see the girl I once was, she has gone but I’m no shell of a girl crying in a corner, and I realise just how much I needed a reality check…. And I have got it from the highest order. I am finally real.

I am grateful to all the amazing people around me, to my family to my chosen family (friends), acquaintances that give support, other ladies battling on, to everyone that supports me and other people battling on and those that haven’t well I literally don’t care. I haven’t overanalysed why some people don’t like my posts on social media, why certain people don’t seem to bother to get in touch, I truly don’t care. Because the friends that do Are the ones I want. The people that care are who matter.

And I matter, I matter whether I am tanned, blonde bikini model and athlete who works a high powered job with a good salary …. Trying to make it to the top of the corporate world…and I matter as a bald, pale, chubbier, non-worker ( I’m on sick leave so one day I will be back at a desk, but not for a little while).
I am finally able to like myself more than ever, whether I have kids or I don’t ….. I know plenty of kids so if I don’t get my own I can screw up everyone else’s 😂😂😂 my sister better watch out I’m blatantly going to be the bad aunty 🙈😂)

Of course I have my dark days but they are fewer and farer between than ever, they go quicker than they did. And of course I stress but it takes more, and I do stress less. But I’m present, I watch a film and watch it, I eat food and enjoy it, I fully appreciate the trees, the blue skies the 5 minutes I got earlier to put a face mask on.

And although I am mostly sleepy, or useless I feel happier in myself and there is no amount of money in the world that could have bought me this feeling of pure, unadulterated blissful realism.

Sometimes you have to go through a whole load of crap, to appreciate what you have.

But if anyone can learn from my lessons….. Enjoy yourself, love yourself and be real to yourself. Take five minutes to be grateful for what you have today. Xxxx

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Grumpy, Tired, & Useless.

So today much like yesterday I feel grumpy, tired and useless. I feel like everything I say and do is wrong. That all I want to do is sleep. When I have lots of time to cook and clean I just don’t feel like I have the get up and go. I don’t like the thought of food, but I’m hungry. So veggies and tomato based sources are all I can stand the thought of eating.

A lovely lady said to me, chemo four was her worst, (not her exact words lol) but it is, and I have 3 more to go 😩 of tax. I will spell the proper name when I am up for googling that.

I take everything to heart, I want to go and figure out some sort of amazing motivating calling in life but I can’t even be energetic enough to move out of bed. All I want to do is sleep and I know I shouldn’t as it makes me feel worse, and then I don’t sleep at night. And when I do sleep at night I have nightmares. I have dreamt the craziest things and I don’t want to be dreaming them as they all leave me in pain or dead! I’m not even joking, it’s ridiculous! My brain is having a melt down about cancer, life and just dealing with all this. I worry if I eat too much dairy I’m making myself I’ll, if I have a beer or glass of wine I’m going to boost cancer, that if I do anything it will spread, or if it’s gone it will come back, or if it has spread, what tests should the hospital be doing. I go for treatment but no one X-rays me, or tests me what if I am all clear, what if I am not. What if, what if, what if…. Seriously I am driving my self insane. I shouldn’t be thinking these things, but it is all consuming!

I’m narky, I’m irritable, I’m upset and crying most days and I have no way to rationalise this whole stupid situation. I want to be at work, doing what I do, I want to be in the gym working out not feeling exhausted, I want to be on holiday, I want to be me…. Not this shell of a girl who feels like I’m not good enough at anything. That feels ugly, fat and useless on top of feeling just yuck I feel like I can’t concentrate on anything for very long at the moment.

Moan moan moan. All I do is moan….. So I need to seriously stop this downtrodden thinking, it does nothing for your spirit, your positivity, your toxin free environment … But as I think I have said from the beginning this toxin free journey is that…. I’m not perfect, I’m giving it my best shot and don’t have all the answers, and probably never will, but I can try!

So at some point I am going to figure a way of making this blog more about helping others than about my stupid rants of how emotional I am and tired. I need to sort my life out! Not today though …. I’m ranting!

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