Tag: future

Cancer…..

Published on by melindacooksey4 Comments

I said to myself a few weeks ago I wasn’t going to keep writing about cancer and feelings and being one of those emotional bloggers.

I was going to become one of those popular bloggers that write reviews about the multitude of products they use, and how to apply make up to look like a Kardashian. But here I am again, writing about cancer.

! And I suppose I am not giving much hope to all those out there about to embark on the journey, that it is doable (please note it is doable and I am just having a ‘fear’ day, and that any lady reading this who has survived, or is going through treatment will know is normal).

I spent my day yesterday, my mother’s birthday (whom I did not tell)in hospital waiting to be seen by a doctor, a man who effectively poisoned me and radiated me with beams of light to rid me of a disease that could of killed me. I waited 2 hours, due to him running late, to be told I need bone scans.

No, don’t worry or I’m sure it isn’t anything, or no it isn’t the bone the GP has it wrong. A chat, another appointment with him in 6 weeks, blood tests and a bone scan request. Since chemo and radiotherapy have finished I have already had my first ever filling, chronic pain in my left breast and numb finger tips (further investigation pending – it’s either carpel tunnel – common apparently after chemo or nerve damage again thanks to chemo!)

Best case scenario from this bone scan is I have weak bones due to radiotherapy, worst case scenario secondary cancer, and somewhere in between lies the potential that I have a broken rib due to weakness from a treatment for a disease that invaded my body and wont seem to fully leave me alone!

To be told this, whilst you see all the leap year Meme’s on facebook, stating use your extra day wisely, get engaged, blah blah blah, and knowing that if you hadn’t been in the hospital you would have visited your mom on her 60th Birthday, well F*&ked me right off.

This time last year, I got diagnosed with cancer, I didnt really beleive the concerns, I was too fit, to healthy, but the day I got diagnosed (my sister’s birthday) whilst i was in the waiting room, I felt that wind blow across my body, you know the one you see in the films, that means something is about to happen. I felt that all knowing feeling and knew before they even told me, that I had cancer. In my lifetime I never want to feel that again!

yesterday, and today I have felt scared. What if I am designing a help system for women out of recovery and I have it again? I feel sick at the thought of how to tell my mom. I honestly can’t cope with the emotions it makes others feel around me.

Will I live to see my 40th Birthday? Will I be here? what am i going to be remembered as if I die? Do I want to die? Am I ok with it? Have I achieved enough? Why am I not getting up earlier, and making the most of each day? why haven’t I created a bucket list? Why am I not doing all the things I say I will do and want to do… why am I coasting at the moment?

Am, I going to have to go through this every year? every time there is a check up, or something doesn’t feel right? Am I going to type a yearly blog of how scared I am? Or how I am underachieving?

What if it isn’t cancer, and I have weak bones… am I mean’t to be thankful for that? because I don’t think I will be! I don’t want to forever more be in pain when I lie on my left side. I don’t want to be fragile. I don’t want to feel like I could break a bone through sneezing.

I am not a fragile person. I am robust. I have survived car crashes that should have killed me, repaired my body after countless running injuries,been thrown across rooms and not even so much as got a bruise. I just survive. I always have, and now I have this niggle in the back of my head thinking, what if….what if I don’t, what if i used up my 7 lives?

I am writing this, thinking I don’t even want to publish it, as my mom will get upset, and worry and i honestly can’t even cope with the burden of her feelings, but i know I need to vent and get this of my chest because otherwise I am probably going to cry. And F*&K if I am giving cancer anymore tears!

This disease is crap, the treatment is traumatic and the after care is well non-existent. My doctors, my breast care nurse and everyone have said no mental health support for me, as breast cancer isn’t allowed to have it. So i write, I write about how f*&king scared I am that 1) I could get breast cancer again, 2) I could get secondary cancer, that is basically un-treatable, 3) that i get ovarian cancer – from the pills i take to keep breast cancer away 4) that my life feels a total mess right now. And that I am not in control.

Not quite the blog of a positive young woman, striving to be calm and have toxin free thoughts.

Natural Remedies. 

Published on by melindacooksey1 Comment

Obviously, as you can see from my previous moans and groans… I am a wanna-be toxin free mind and body kind of girl. I try my best to be 100% but I’m sure even the most confident people in the world have a shake of mind and spirits and want to eat pizza! 

The toxin free, clean (mostly) eating in itself is a personal choice and I don’t force it upon anyone although I actually do recommend trying it. As for me I have found some great natural remedies along the way and been shocked by what I used to put on and into my body! Obviously I still have a flutter with ice cream, a drink, and have the odd pizza or other junk food! I am only human! 

But as I am on a crap load of unnatural, man-made drugs to rid me of any Cancer still left in this body, I try to not use all the medication they provide to stop the side effects. I do use the anti-nausea items because seriously I hate being sick and that would cause me so much stress to be throwing up after each chemo for hours. I made that choice and I will stick to it. 

But so, basically, when dealing with chemo and breast cancer surgery and etc etc you are told no deodorants. There is a lot of crap in those standard deodarants and well let’s be honest…. Do you still moan you smell at the end of the day girls? Yep, most girls I know do! But not me…. Little miss hippy over here makes her own and I don’t smell! …. I literally mix the amazing (sometimes it seems to good to be true) organic  coconut oil and bicarbonate of soda together! And I am smell free for the day….. Also you can use this same mixture as a toothpaste to remove stains … Forget expensive toxic bleaching and give the  80p bicarbonate of soda from the supermarket a go! 

  I also use bicarbonate mixed with alkalising salts to clear my bowels. I know gross! But seriously constipation is the worst from chemo and sickness medication, it hurts, it makes you feel 10 years older, you feel frumpy and just down right poo! (Pardon my pun). Now I used to use bicarbonate of soda as an alkalising buffer when I was a sprinter and personally stumbled upon the, then adverse effects of the 80p supermarket goody, when someone else mixed my drink for me and made it too strong and I subsequently ran to the toilet not around the running track fast! But should anyone want a performance aid that is natural and buffers lactic …then do some research as there is a proper measure to use…. From memory I believe I used to use….. 1g to every 10kg body weight 90mins pre track session and 30 mins pre track session… I didn’t do this for long as I had a few car accidents and then quit so never competed on it but double check its ok to race on and see how it works in training for all sports where ‘you hit the wall, get lactic, feel the burn’ … Or just use it as a good clear out for the intestines! 😱🙈 but be careful of you have heart conditions I don’t recommend using too much if you are salt sensitive! 

  Organic Coconut oil…. My favourite thing…. Seriously stranded on a dessert island I would take this … Or I guess learn to crack open coconuts and make my own! … It can be used to pull the bacteria and toxins from the body by swilling it in the mouth for 15mins, it makes your teeth whiter, skin softer, apparently scars heal faster (I’ll let you all know on this … Bio oil never worked for me so I will see if this works!) and my hair grow faster, which my hair is now growing and I look like a fluff ball! 

On top of this… You can cook in it and eat it! And yes when on Keto diets and desperate for chocolate I have had the odd teaspoon of coconut oil straight from the jar as pudding! 

I literally have a jar in what feels like every room!  

And just as a bonus to this post here is a little positive meme from the ladies of young breast cancer forum who I chat with regularly on Facebook! 

 

Monday = Game Face.

Published on by melindacooksey1 Comment

Soooooo….. This weekend I went a bit AWOL (absent without leave), the plans I made I chickened out from, so I didn’t drive to London to see all the GALAXY GIRLS pull cars, sprint and then strut their stuff on stage. I desperately wanted to go but was also scared stiff to stray to far from home by myself and drive for that long. I think this first time round I am questioning myself all the time as to what I can and can’t do. I feel like I let friends down and I’m really sorry about that.

It’s all a bit of a testing ground. My second round will definitely be easier to judge as I will have done it once. So I’m trying to let myself off for not going and supporting all the girls as I know I will be there next time and it was just too soon for me.

So I was a bit upset with myself all weekend and was a grump but agreed to go out for a bite to eat Saturday night with Cassie to cheer me up and ended up staying out until sunrise! Seriously I haven’t done that since before Christmas.

And I know, I know I’m on treatment and I shouldn’t party! But actually why not? I drank, I danced, I laughed, I had a good time. And the nurses say you can have a drink just most people don’t want to due to the metallic taste, but I don’t have that this time round so I drank while I can!! It was great to let my hair down and meet new people and chat old athletics stories to a fellow former athlete!

So Sunday was spent recovering and eating a disgraceful veggie pizza, but Monday morning I woke up, early, and headed to Hereford to the Haven, an amazing charity who offer support to women with Breast Cancer. I had a hypnotherapy session followed by yoga.

The hypnotherapy isn’t someone making me do a chicken dance it is a lovely lady called Laura, who talks to me about what I want to achieve from the session, and makes me realise I have all the skills to tackle everything but I just need to apply them. She was talking to me whilst I visualised today about snakes and ladders. And you know what, it stuck with me, life is just like snakes and ladders you get an opportunity and you climb up and feel totally in control, and sometimes a set back comes along and you feel out of control on the slippery snake then you balance, plod along and another ladder is set out I front of you. It was a great analogy for life.

And in Yoga I have really progressed.,I actually managed to touch my hands at my back today and did downward dog, which I haven’t done since my operation. It’s hard when you go from being super fit to super crap at everything but I felt like I made progress and that is great for me.

So today I have game face on, I’ve got back in the kitchen since my first chemo and cooked some simple food, done yoga, worked on my head, and I feel great for it! It really is the simple things that keep you happy and just well …. YOU! I am post chemo day 10 and feeling good. I might have thought at times I couldn’t do this but today I feel like I can!

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Baby Maker.

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So first thing this morning, I visited the Women’s Hospital in Birmingham. I still can’t drive so had to get a lift with Cassie, who got up at the crack of dawn to come get me, I have to admit I feel like a proper burden at times!
So we park the car (£4.50 for hospital parking…seriously?!?) and walk out to be faced by the Cancer Centre, I see cancer more and more since my diagnosis, I see so many posters, adverts, I even watched a film that was meant to be a comedy about it … It wasn’t funny by the way, so Netflix need to sort that description out!

Anyway back to the point of my blog, I got probed and prodded, literally, scanned and more blood tests, they must have a whole blood bank from me now. And for the first time given lots of information without asking, and a projected time line.

Now I have to get my head in gear to decided if it is worth harvesting my eggs, In case chemotherapy takes away my fertility for the future and balancing this against the risk of increasing the spread of cancer. I could set of another tumour if I go ahead. My deadline is Wednesday 10am. My first injection will be that day if I choose this path and do I want another operation under general anaesthetic. Will it just happen if it is meant to be?

There are so many things to consider with this, my life is a whirlwind, in every which way, my head doesn’t switch off. And I can only imagine tonight will be another sleepless night for me, my head is in future mode which is weird as most people, including myself tend to look at the past more than future, so it’s a strange feeling to be future dominant.

Is it worth it??? Is a baby in the future worth the risk of setting off more cancer? And then the percentages are decreased for me potentially, as they aren’t allowed to wait for the right time in my cycle, due to my ‘circumstances.’ It’s a case of now has to be the right time.

So to help my decision I called my onchologist’s secretary today asking for my test results from my oncho test. They are in! Eeeekkkkkk. But she isn’t allowed to give me them. Booooo!
So I have asked to be called before Wednesday by my onchologist. I see my him Thursday to determine my treatment pathway, but knowing the results would really help with this decision.

How am I feeling? In one word: Sick. I have these nasty feeling butterflies in my stomach that won’t leave me alone. It’s like when I used to race, all through warming up, I would feel like I was going to be sick, I would be so nervous, it’s that but for longer than an hour!

So I’m waiting for a phone call now. Im not leaving my phones for even a second today. I ate my green soup for lunch, that was yummy and organic, I will post a recipe for it later this week.

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A Proud Day. The Fight Was Worth It.

Published on by melindacooksey3 Comments

So sometimes life can feel like a constant battle, yep, I testify to that statement! It can feel like everything and everyone is against you, and nothing goes in your favour. But it isn’t and they aren’t!
Fact is, whatever it concerns, if you know what you want, you will get it by using positive affirmations. Drown yourself in negativity and you will get bad results, and then when you wonder why that didn’t work for me, why don’t I get the cash, the relationship, the car I want? Well, you would if you just know what you want, believe you deserve it and ask for it and you will receive it. If you haven’t read the secret, or watched the movie, go check it out on netflics tonight.
So I have plenty of things I want, but the most crucial at the moment, is to do with my decision making, I have constantly said to everyone, I need a percentage, I need facts and figures to make my decision. I can’t go ahead with chemotherapy on the basis that I’m young, it just isn’t enough for me.
But I have asked, pushed, fought my corner all the way along with the NHS. And honourably ever request and argument I have given they have conceded too, they probably see my name on paper now and get as anxious as I do about going in to see them. I might be scared on the inside but I do my best to act fierce to them and I am so pleased to say they have put me forward for the genomic cancer test. It is expensive, a whopping £2,800 and is normally privately funded, but I am pleased to say, I am the first person in the country to get it paid for by the NHS, since its introduction into the system on the 30th March. So as this is now part of the system, if you are struggling with a chemotherapy decision, please ask your consultant if you are eligible for the test and if you can have it. Put your foot down, make them understand it is your life and you need to know! If like me you struggle to say it in person, the emotion gets to you, take a few days and compose an email, or letter to the consultant and team.
Knowledge is power! And doing my research has paid off! I find out in 2 weeks how effective chemotherapy will be for me in reducing my risk of getting cancer again.
Life is a funny thing, and I have learned through this that you have to respect and love yourself, I just wish I had sooner!

Genomic test reference:
http://www.cancercenter.com/treatments/genomic-tumor-assessment/

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